Sunday, April 22, 2012
Starting over with guarded hope
Our second opinion visit was a week ago. For now I'll try to move on from the frustration of not having seen him first and explain where we are now. The short version is after reviewing my history and chart and imaging, our new physician said he thinks we actually haven't had much done. Obviously there are no guarantees, but his opinion is that we have a few options/procedures left yet. We might get into the normal sections, open the blockages, reconstitute a "normal" cavity, and still not be able to be pregnant. The reality is live birth rates for Asherman's patients after treatment for severe cases are still only 30-40%, but the potential medical complications do need to be addressed as well. We spent a lot of time with him going over all aspects of my case. We went over all the questions I should have asked the first time around - and I didn't have to ask most of them because he volunteered the information. He's done over 250 cases like mine (as opposed to the handfull our previous doc has seen). The other recognized experts are on either coast, so they've basically trisected the country in terms of getting referals. He was frustrated along with us that he was just down the road and didn't get a shot at us earlier & that he even had talked with our last doc between my first referral there and the last procedure! He's had a lot of successes, but also had to tell patients he couldn't do anymore - and assures us he'll tell us when/if we get there. So where does that put us now? Basically with guarded hope. At least now if we end up in the same position we can know we tried everything with the best options available. After the heartache of the last events I'm not letting myself be overly optimistic - I can't face that let down again. But I will welcome any miracle that might come our way so it is worth trying. I'm so fortunate he is right here in town - we can actually schedule all this with ideal timing and not be constrained by airline travel or needing multiple days off work, or expense issues, or any of the other limitations so many of his other patients are under. I will be going through another operative procedure in attempt to breakdown the scarring (but now in expert hands) and another round of crazy hormones, then a number of office procedures to try and keep the scarring from returning. The difference is really in the details - the instruments, timing, doses, follow up procedures - that are all developed specifically from experience in treating other Asherman's cases. One of my good friends said in her own difficult time that it actually made it a little easier to realize and accept not being able to control everything. I'm working on that, and I think I'm making progress there. So we're keeping our fingers crossed - but not holding our breath. We should know a lot more in the next couple of weeks, and will have some big decisions to make then.
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